Archive for February, 2006

Leeds FaCe It Campaign Exhibition

Sunday, February 19th, 2006

Before my switches were set to “on” (see below) I completely forgot to post news that the exhibition was taking place on 10 February. I had intended to, then went blank and did something else (probably watch TV), sad to say.

Nick has written about it on his blog. Hats off to him and Vicky – I think they’ve travelled to all the events so far. Despite shivering and feeling light-headed Nick stayed the course and reported it a positive day (despite the cold weather) meeting lots of people.

The HNS HepC Awareness site features a picture of local resident Harvey Huckerby cheapest cialis daily price, super discount! buy cialis fedex shipping viagra dapoxetine approval is advocare fda approved . aftereffect setting up take a difficulty how to buy dapoxetine . who works voluntarily as a counsellor for people living with and affected by hepatitis C.

I’ll be watching for more events in the south part of the country – more realistic for my travelling abilities.
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Post Treatment Week 18: Beginning To Feel Younger Than I Did A Few Months Ago

Sunday, February 19th, 2006

Excerpts from a viagra dapoxetine online purchase . licensed drugstore. package delivery insurance. online pharmacy from canada, buy generic medications. bonus free pills  dialogue from the Forum on the experience of post-treatment brain fog:

I was wondering if anyone else experienced post-tx brain fog ? I noticed that my cognitive abilities are way below what they used to be before tx, and I had almost none on tx.
When I start thinking of an idea or a project that I must complete soon, my mind just gets blank
and I go and put the TV on instead. It drives me insane……

Everything is very slowed down, thinking, talking, expressing myself, writing. My 80 years old mother has brighter and sharper mind then me currently, and I’m only 45 (!) so I cannot blame it on ‘old age’ …….

I have noticed that more than ever I’m faced with a blank page and don’t know what to write and spend a lot of time looking out of the window with not a thought in my head, sometimes I think I am asleep but awake. I think they call it zombieism…….

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Teddy, it sounds to me like you’ve reached a very highly advanced enlightened Zen-like mind state. The monks in the monastery spend years trying to reach that “thoughtless” Emptiness and here you are !

I felt the Zen thing and thought that maybe the brain had been slightly fried, but I have a good theory now, its a sense of calm and relief, its a sense that you can and deserve to just sit and think of nothing, Well, it worked for me. I don’t fight that feeling any more, If I can, I just sit and enjoy the fact that I can…….

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From certain perspective it’s all really trivial…yet when feeling dull and half-witted for months and months, with very short breaks in between, patience does run out and some worrying thoughts do set in.

These three people are describing very vividly and accurately what I have been experiencing over the past four months and living with. To their credit, with brain fog and all, they are describing it more succinctly than I think I did on this blog.

It is so reassuring to hear that other people are having similar experiences. Not that I would wish these side-effects on them. It’s just that I thought I alone was experiencing them and I was seriously beginning to think I would end up in this state permanently.

That is why I was so startled ten days ago to discover that I actually felt different than this. Happy. Happy I could think again, remember lists, appointment dates, not walking around in a waking dream. And well.

I’m really pleased to write that I still feel I have my wits back, still feeling happy and well. It’s as though loads of little switches in my mind and body have flipped over to “on” again. I am beginning to feel I can re-connect again and get on with things. I am definitely losing that feeling of being eighty years old – and beginning to feel younger than I did a few months ago.

This whole post-treatment experience is not well recorded or researched, so many people like myself go through this phase not really coping, considerably disconcerted and not realising it’s a common occurence. Perhaps less so for those on the Forum recently as they are sharing and discovering their experience is not unique.

I’m glad to say that The Hepatitis C Trust are planning to carry out some research into this area. I hope we will talk about it when I meet with them. Yes, part of my re-connecting with people has meant I made contact with them and I look forward to a visit there next week.

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Post Treatment Week 17: Looking At Things With A Different Perspective

Saturday, February 11th, 2006

On Wednesday this week, at work, I was startled by the sound of whistling. It didn’t last long once I realised with astonishment it was me. I never whistle – can’t remember the last time. What was happening? Then on Thursday morning, uncannily, the same thing happened again. I was just as startled and astonished. Stopping to reflect, I realised I’m feeling happy. (And that my head and my heart don’t always seem to be in synchronous communication.) Markedly happier than I’ve felt for some time. And it’s still the same today, Saturday. Happy.

And I’m noticing the sunshine and blue skies with billowy clouds and enjoying these in a way I haven’t for some time. Several others have commented on perceiving things around them differently now after their journey through treatment. There must be something to it – I’ve just realised my recent fascination in taking photos is, of course, an interest in looking at things with a different perspective, even everyday objects and places.

Have I turned some kind of corner on the post-treatment road to recovery? I think so. It is four (calendar) months today since I finished treatment.

Looking back on it, it’s been almost as tough as treatment – in a different sort of way. In those first few weeks I felt totally drained, tired, exhausted living with the haemolytic anaemia and a “skinfull” of pegylated interferon and ribavirin still swirling about inside me. The emotional effects were difficult. I felt very low – probably what we refer to in everyday terms as depressed. I make the distinction between this and ‘clinical depression’ as I think it is not depression within formal diagnostic terms. And cross – I felt worse off now than I did before I started treatment.

I wasn’t even excited about the ‘end of treatment’ PCR negative test showing I had cleared the virus. Too low to celebrate. And I was missing the regime of treatment – restricted it was but I knew where I was, didn’t I. This felt like a ‘no man’s land’, finished treatment and virus-free but not able to pick up and get on with life. Brain-fog lifting so I could think more clearly about what I should and wanted to do, but no energy or drive to put anything into action. Looking back, I had a nagging thought at the back of my mind that this would be it – the meds had left me like this permanently.

All this had such an impact on me in the first few weeks I felt I couldn’t write about it openly on my blog. Madness. I didn’t want to admit being a failure, completing treatment and ending up a mess. Feeling worse now than before. Experiencing the ‘ghosts’ of treatment side-effects still haunting me. Although I had achieved 48 weeks of treatment, I didn’t want others on treatment to know what this achievement had brought me.

It was such a relief for me to discover through the Post Treatment Forum that others were encoutnering many of the same feelings and experiences. That really restored my confidence and made being in ‘no man’s land’ a bit easier to bear.

Thanks to the continuing input and comments on that Forum it looks like the following are common experiences in the post treatment phase:

• Clearing of the brain-fog and regaining the ability to think and remember again

• Aggravated skin irritation or rashes – even where this hadn’t been a problem on treatment, and worse where previous skin irritations appeared during treatment

• Moods – ‘post treatment blues’, sense of loss or mourning at the end of treatment. And continuing outbursts of anger, but not as ridiculous and pronounced as during treatment. Some people begin to wonder if the treatment was worth the cost – they feel worse now than they did before they started; it takes concentration to remember the value of clearing the virus people have lived with, often unwittingly, for years.

• Insomnia continues – but begins to get better

• Anaemic continues – the medications causing it are of course still in the body which hasn’t yet been able to recover and re-build. People still feel weak and breathless, but less so as the weeks go by.

• Hair continues to fall out or thin, albeit more slowly

• Hypothyroidism – continues where thyroid function was disturbed by meds during treatment.

This list looks a reasonable – and possibly complete, inventory of post-treatment experiences. I suspect it’s the first record of information about this area. I don’t think there’s much awareness or knowledge amongst medical teams, for example, about the after-effects of treatment. So it feels important to make a record of it and to share it with those on treatment. Being armed with information about other people’s experiences can be reassuring and not necessarily alarming. And raising awareness about Hepatitits C is not just important amongst the general population but also for those going through the treatment journey and health professionals who work with HepC. we gave all information above regarding to cialis pills. can < ~ prescription drug information and... atarax without prescription buy cialis from
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